Saturday, August 25, 2007
My Infertile Identity
As I mentioned in the first post of this blog, Ebo and I are unable to conceive a child without Assisted Reproductive Technology (ART). Ebo has Cystic Fibrosis, a genetic condition that mainly affects the lungs and the digestive system. Most people who have heard of CF know about that part, but few realize the CF also affects the male reproductive system. 99% of males with CF have a blocked or impaired vas deferens. I won't draw a diagram, but the important fact is that we are unable to conceive "naturally." Period. There is no maybe in this equation. No surprise ending.
Ebo and I knew this fact going into our relationship. Like I said before, when I was in my early twenties, I didn't think it was a big deal. So what if we weren't going to have kids? Having kids was the last thing on my mind. I couldn't have a child when I was backpacking though Peru or climbing the volcano Cotopaxi. Then two events hit me like a ton of bricks. I already talked about my beautiful goddaughter, D. being born. As soon as I held her in my arms, my biological clock began winding and the reality of our infertility began to kick in. I began to notice how many pregnant women were out there - and they all seemed to be in Target at the same time.
Around the same time, I decided to concentrate on medical anthropology in graduate school. I must explain that although my research has nothing to do with reproduction, a great deal of the research in this field revolves around pregnancy, childbirth, and midwifery. Even my advisor, for whom I was analyzing data, was completing a project on childbirth among African immigrants in France. I can't tell you how many articles I had to read about childbirth. One book in particular was called Birth as an American Rite of Passage by Robbie Davis-Floyd. She talks about women, though their childbirth experiences are "socialized" into the technocratic medical system. Although Davis-Floyd was very critical of the biomedical way of birth, I couldn't help becoming kind of sad that I wouldn't be welcomed into this system because I was unable to give birth.
Then came the final straw - Robbie Davis-Floyd was going to be teaching a class at my university. Not just any class, but one that was required in my program. I had to endure a whole semester of her talking about birth, pregnancy, and breastfeeding. I was forced to sit through a film entitled "Birth in the Squatting Position." She also assigned a book (which she edited of course) called Cyborg Babies: From Techno-Sex to Techno-Tots which critiques reproductive technologies like In-Vitro Fertilization (IVF). Needless to say, this class left me depressed. Not only was I not going to be part of the birth rite of passage, but it was also wrong for me to try IVF to try and do so.
After that horrible semester, I did another summer of research in Quito. While I was there, I thought a lot about if I was going to have a future as a parent. When I got home, Ebo and I decided not to think of children as something that will happen to us in the future, but start to make the idea of children happen for us in the present. This is when I began to discover the myriad of infertility message boards and online support groups. Thus our journey began.
I will post about our experience about each of our children later, but I will conclude now with this thought. My infertility journey was short compared to most. I don't claim to be a veteran and my scars do not run as deep. However, infertility is part of who I am. Even with two children, Ebo and I are still detached from the rest of the world. Perhaps it's because we haven't participated in that "American Rite of Passage."
Tuesday, August 21, 2007
Canceled...and other random happenings
I'm really kind of bummed. Not only was I looking forward to teaching, but I was really excited about feeling like a "professional" again. The money wasn't the only incentive; in fact, I really don't make much. I just wanted to feel like I was contributing something to society. I know, I know - raising my children is contribution. I just wanted to have another identity for two days a week, know what I mean?
But maybe this is what I was asking for. Ebo said we shouldn't take the kids out of their daycare/parent's day out program we enrolled them in when I thought I was going to be working. He encouraged me to use this time for the dissertation. So is this a sign? Was I really getting the gift of time? A part of me really wants to just write, but then I really want to start earning a little money. I said before that adjunct positions don't pay much, but it does help pay for some of my shopping vices - crafty stuff, children's clothes, and gourmet coffee. I have inquired about a couple of part-time jobs, but we'll see.
Some other happenings...my friend, Carol just identified me as a "Rockin' Girl Blogger." Thanks, Carol! When I originally started this blog, I didn't have any intention of showing it to anyone. However, recently I decided to come out of the blogging closet and open myself up to my friends and the general public. I think I need the support and it feels great to know that I have people cheering me on. But with this decision comes responsiblities...I now have to answer to the blogging community! My first task...identify other Rockin' Girl Bloggers:1. Snoopy's Crafts: Joanne rocks! I know Carol has also identified her as "rockin'," but I want to mention her again. Carol rocks, too, but I can't tag her back
2. Bama Girl: I met Bama Girl through a message board called "Rubber-Ducky." She supported me when we were going through the adoption process for Destructo Boy. She is now waiting for her daughter to come home from Guatemala.
3. Inca: I also met Inca through Rubber Ducky. She has been through a lot of heartache, but she uses her experiences to help others.
The following two bloggers don't know me personally, but I read their blogs on a regular basis:
4. Twice the Rice: Ji-In is an adult adoptee from Korea. Her blog is very insightful and critical and I have learned a lot about how I want to raise my son.
5. Inconceivable Journey: Jenna has written a wonderful book about her experience with infertility. She now writes a blog (or epi-blog) that chronicles her life where the book stops. She is also going through the adoption process. She is also the person behind the "Traveling DVD Club" (see sidebar).
I salute you, rockin' bloggers!
Friday, August 17, 2007
Teaching - my other distraction
So today I'm putting the finishing touches on my syllabus for next week. Wish me a productive semester!
Wednesday, August 15, 2007
Going Native
Today, anthropologists are not really concerned with "going native"; in fact, most of us find that phrase outright offensive to us and the people we study. However, the idea of me "going native" has crossed my mind several times as I try to put my dissertation together. No, I am not going to become a hunter-gatherer or a herder. I'm not even going to do a Carlos Casteneda and make my career by taking hallucinogenic drugs. But many aspects of my life are starting to mirror my informants', though I can tell you this is not voluntary.
Let me first explain to those who do not know me: I have spent the last six years following several families in Ecuador. The focus of my research is how they cope with having a child with a disability. Most of the children are non-ambulatory and will require care well into adulthood. Over the years I have collected many stories that describe heartache, fear, sacrifice, and unconditional love. Parents not only have to fulfill their roles as mothers and fathers, but they become caregivers, teachers, and therapists for their children.
When I started my study, I was newly married and wasn't thinking about children. By the time I finished my fieldwork in 2005, I had become a mother. My experience started out as abnormal - because we had conceived via IVF, my pregnancy was immediately labeled as "high risk." By my third trimester, I was really at risk. I was diagnosed with pre-eclampsia at 28 weeks and my daughter (Sassy Girl) was born at 32 weeks. My fieldwork was not only cut short, but I had a lot more worries than I was ready for. I knew having a child would be difficult and take up all my time, but I never envisioned having a 2 pound baby in intensive care. Even after she came home, my time was spent going to specialists, pumping milk, and being worried. Day care was out of the question - Sassy girl's immune system wouldn't be able to handle it. And I couldn't embrace the idea of another person taking responsibility for my daughter, especially when she was so sick.
A year later, I resumed my fieldwork and taken Sassy Girl with me to South America. I thought I would resume my life...then after we came home the unimaginable happened. Sassy Girl contracted E. Coli and ended up in the hospital with kidney failure. I almost lost my little girl. Again. It took her over a year to fully recover.
I don't think people really grasp what Ebo and I went through, especially other parents. I have been told by countless well-meaning mommies and daddies that I worry too much, that my kids are fine, that "they know what it's like." I know every parent worries about their little ones, I feel like I live in constant fear. Because of the kids's histories, we take every sniffle, every fever, every pain very seriously. I feel like my whole life is on hold because I'm waiting for my kids to be "well." And I don't even know what "well" would mean.
One of my informants is a woman Susana with a daughter named Gabriela. Gabi has severe cerebral palsy and is also visually impaired. Susana considers herself fortunate enough to be able to stay home and care for Gabi. However, being a caregiver has affected her own health. When we last spoke, she needed surgery to fix a hernia, but was afraid to have it done because it would mean that there would be no one to take care of Gabi. At the same time, lifting Gabi in and out of her wheelchair was making her problem worse. Living with the pain didn't phase her - "Es la vida," she would tell me.
Granted, my daughter is able to walk and does not have any impairments. My children are more than likely to grow up healthy, despite their tough beginnings. I also don't have a hernia and am able to take care of myself (most of the time). Yet, I must say that dealing with my kids' health crises changed me - I no longer have the same priorities. Yes, my degree remains unfinished. But I'm not going to take a back seat to my kids' lives just to be able to put "Ph.D." at the end of my name.
What did happen, though, was I started identifying a lot more with my informants' stories. I could relate to their struggles with doctors, specialists, and therapy. But could I relate too well? It seemed like the more progress I made on the dissertation, the more my kids would get sick. Was I "going native"?
If anything, my experiences will make a great preface in the finished work.
Wednesday, August 8, 2007
A Balancing Act
So right now I'm committed to getting my butt in gear. The past week I have searched the city for all the cafes with free Wi-fi. Unfortunately, the kids are out of "school"/daycare until the end of the month, but I have found a great economical alternative to the unreliable babysitters I seem to find. The newest phenomenon in childcare seems to be drop-in babysitting, or "Playcare" centers. A couple of times a week, I drop the kidlets off and they are able to play on the giant indoor playstructure, explore the hundreds of toys we don't have at home, or just run around like crazy while supervised by staff who have had background checks. They are even provided a meal if I order one, which means two less lunches I have to fix that day. Now, I usually don't leave the kids for more than three hours at a time, but I'm hoping this gives me a chance to get a few things done while it is still daylight out.
Though I really don't have anything tangible to show for myself, I have had a chance to catch up on some reading for a paper I would like to write. Many articles have been written about the challenge of being an anthropologist and having a family, but most have been written in the perspective of the anthropologist's work being a career priority and a significant source of the family's income. This is not the case in our family. Though my research was fully funded, my life as an anthropologist did not come even close to covering our mortgage, living expenses, or fertility treatments. I still brought home a good paycheck from teaching and other research, but Ebo clearly has been the one with the stable income. Before Ebo and I decided to become parents, I mistakenly thought that I would still have some time to finish graduate school. It would just take more time than I originally thought. However, what I have found is that yes, there is time if I seek it, but my priorities have shifted and I no longer seek to use my free time to dive into my work like I used to. It's not that I don't have an interest in my research anymore, but certain circumstances have formced me to compromise and re-prioritize how I am to spend my time and energy.
In an edited volume entitled Children and Anthropological Research, Barbara Butler and Diane Turner (1987) described how anthropologists with families have tried to separate their academic and personal lives even through their spouses and children are very visible to the groups they research. This assertion depends on the assumption that the anthropologist considers her work to be "professional," which they define using W.E. Moore (1970): A professional is a person who earns most of his income from a full-time job for which he has been educated; joins others like himself in the occupation's organizations; enjoys a sense of occupational autonomy; views his work as providing a services to his clients; and most signficantly, he treats his occupation as a 'calling' with an 'enduring set of normative and behavioral expecations.'" My question is, what if it is virtually impossible to earn most of my income as an anthropologist? What does that do to my status now? I cannot work full time as an anthropologist. Even before children, I did not earn enough to live without Ebo's income. Most of my fellow graduate students survived on loans, working odd jobs, or living off of what we called "The Lunch Box," or our code for "spouse of anthropologist."
The fact that I didn't earn enough money didn't affect me before Sassy Girl and Destructo Boy came along. Sassy Girl was born early and had a myriad of health issues, so day care was out of the question for the first six months of her life. Ebo and I decided that I would put my work on hold not because I was the woman, but he was the one with the higher paying job. (Well - I guess I was the lacatating one, too...but I am trying to make a point) Her well-being consumed me - I has worked so hard to be a mother that I wasn't going to screw it up by not making my beautiful daughter a priority. Crises and events came and went (including the wonderful arrival of Destructo Boy), but it became increasingly difficult pick up where I had left off. I had changed, my life had changed, and my perspective on my career had changed. I was encouraged several times to get a nanny and just finish, but my reluctance wasn't just about the money. Deep down inside, I am a control freak. I didn't want other people raising my children, especially when they both had health issues.
I hope to turn these ramblings into an informative paper about academics, family, and gender to present at some conference. Perhaps I have found a new research interest, or maybe I just need some therapy. Either way, I just need to get it all out so I can move on.
References Cited
Butler, Barbara and Diane Michalski Turner (1987). Children and Anthropological Research. New York: Plenum Press.
Moore, W.E. (1970). The Professions: Role and Rules. New York: Russell Sage Foundation.
Thursday, July 12, 2007
It's now or never
I must give a little background. My husband (who I from now on call "Ebo") and I married in 1999 after four years of dating. He is the love of my life and I have never doubted for a second the decision I made to marry him. Coming from me, this means a lot - I doubt everything. But when we got married, we knew we were going to have problems when we decided to have children. Ebo has a genetic condition that prevents us from conceiving a child without some major intervention. We knew the extent of this problem well before we decided to get married, but when I was in my early twenties, having kids was the last thing on my mind. I didn't think the concept of "infertility" was such a big deal. I couldn't imagine the inability to have children would consume my life and take over my identity. Yet three years later, we were on the baby bandwagon and both our lives were forever changed.
Looking back, it probably was the birth of my goddaughter that started the baby "itch." As my friends and I started graduating from college and graduate school, I attended a "wave" of weddings, beginning with mine. A couple of years later, the baby announcements started appearing in my mailbox. Photo creations from Shutterfly adorned with pink booties, blue rattles, or yellow ducks. When my best friend told me she was pregnant, I was elated because I knew this baby was going to be big part of my life. And then when I held her in my arms for the first time, I experienced both joy and sadness at the same time. Joy because this wonderful creature captured my heart. Sadness because I thought I would never experience this kind of joy as a parent.
Not that I didn't have a lot going for me at the time. Though I had become wary of leaving a career in elementary education to go to graduate school and persue a doctorate, I was doing quite well in my studies. I had started a pilot study in South America investigating the lives of families with children with disabilities. I was working on my grant, which would eventually be funded by the National Science Foundation. Ebo and I had a nice house in the 'burbs (I detest the suburbs, but it was a good investment). Up until that point, Ebo and I both knew we wanted kids, but we knew that to have them it would take some major sacrifice on both our parts. So after my goddaughter's birth, I went into major research mode. Ebo and I were not sure we wanted to go through in-vitro fertilization (IVF), which was our only option to have a child that was biologically related to both of us. So we spent our time and resources looking into adoption. However, a series of events (which I will probably get into in future posts) led us to the office of a reproductive endocrinologist (RE) and the birth of our daughter in 2004 (who I will refer to as Sassy Girl).
Even if you forget the IVF, my pregnancy with Sassy Girl was anything but "normal." Right before I started injections for the procedure, I found out that the National Science Foundation funded my research. This meant I had to get my qualifying exams finished so I could start my research. After I found out I was pregnant in February 2004, I had to haul major ass in getting my papers done. The day of my quals, I was three months pregnant, plagued with morning sickness, and nervous as hell that my committee would know I was going to have a baby. You see, even though it is not totally unheard of for a graduate student to be pregnant, it is certainly not a preferred step in the Ph.D. process. I wasn't going to tell anyone until my exams were finished and they handed me a Master's Degree. In the end, they were very supportive and very happy that there would be a new "member" to the department.
15 weeks pregnant, I traveled to Ecuador to start my research. My plan was to be gone for three months and return to the US in my third trimester. I got myself a great OBGYN in Quito and armed myself with every pregnancy book on the planet. I thought I was doing everything right. Then all hell broke loose in my 25th week...I fell down the stairs and bruised my tailbone. All was fine with the baby, but I decided to make a short trip back home to check-in with my doctor in the States. After a precautionary ultrasound, they found that Sassy Girl was not growing as she should and my blood pressure was getting higher. I had pre-eclamsia and I was not going back to Ecuador. I was going to the hospital. Long story short (again, you will hear it in future posts) my little peanut Sassy Girl was born eight weeks early, weighing only 2 pounds, 7 ounces.
Mothering a preemie and writing a dissertation are two activities that aren't easy to do together. Constant worry about Sassy Girl's health and development seemed more important than my data. I eventually returned to the field (with Sassy Girl and Ebo) in 2005 and finished the bulk of my research, but I still had to write the damn dissertation. Furthermore, wanting my family to grow (and knowing that I couldn't do it "naturally") was always on my mind. After long discussions, Ebo and I decided that though we were so thankful to have Sassy Girl, IVF was not an option for us anymore. We started the adoption process the fall of 2005 thinking it would take a couple of years for us to have another baby. But after a series of pitfalls, surprises, and rash decisions (all material for future posts), our son (Destructo Boy) came home to us in November 2006. We now had two children under the age of three. And the dissertation remains unfinished.
Which brings me to my blog. I am making my story public, but I am writing this journal mainly for my own benefit. As I look at my data and try to write, all of this other "stuff" takes over my thoughts - being a good mother, keeping my kids healthy, the importance of my work. A fellow graduate student once told me "Don't get it right; get it written." However, I can't seem to muster up the energy or motivation to do either. But I have to finish, if not for myself, for Sassy Girl and Destructo Boy. I hope that I can use this blog to organize all this stuff so I can finish what I started six years ago. It's now or never.
