Tuesday, March 11, 2008

For Tricia

About a month ago, I discovered Nate's blog, Confessions of CF Husband. His story is amazing and you should really check out to blog to get the full effect, but here's the abstract: Nate's wife, Tricia has Cystic Fibrosis. While preparing for a lung transplant, she discovered she was pregnant. Against the advice of some doctors, they went ahead with the pregnancy. She delivered a baby girl, Gwyneth, at 24 weeks. Gwyneth is now thriving the in the NICU and Tricia is back on the transplant list. Tricia's husband, Nate blogs every day to share the accomplishments of both "his girls."

If you know my history, you can see why this blog intrigues me. As a wife of someone with CF and a sister-in-law of a lung transplant recipient, I can relate to Nate and Tricia on some level. I have also ridden the "NICU rollercoaster" with my preemie daughter. I look forward to reading their blog every day because amidst all of their challenges, they remain very faithful and positive. And Nate is an example of the spouse I strive to be - he has accepted the reality of Tricia's illness and embraced the role of "CF Husband." His love for her is unquestionable. I hope that my own husband is able to feel that love from me.

Anyway, another blogger and CF Husband regular has challenged other moms out there to share their joys of parenthood with Tricia. Since she is still very weak from the pregnancy, Tricia remains in the hospital while she waits for her transplant. Gwyneth is in the same hospital and Tricia recently got to hold her for the first time. The list I am sharing with Tricia come from my perspective - that of a mommy of two preemies.

My List for Tricia

  • Being with your little one at HOME with no hospital staff (a litte scary at first, but you will enjoy the quiet)
  • Holding your baby without monitors going off
  • Thinking in ounces instead of cc's or grams
  • Not having to think about your child's adjusted age
  • Celebrating every milestone, no matter how small, because you know how hard it has been
  • Realizing that the NICU is a distant memory
  • Reassuring the dog that her tail will not be pulled anymore
  • Singing Wiggles songs in a bad Australian accent
  • Getting wet drooly kisses on the cheek
  • Hearing "Mommy, I poo-pooed in the potty. Want to see?"
  • Hearing my husband say to his asthmatic son: "You think once a day on the nebulizer is bad? I have to do this twice a day! And it takes me half an hour! You only have to do this for ten minutes!" (Keep in mind my son is only two years old)

Nate and Tricia - I know that I am only one of thousands of readers you have in the blogosphere, but know that I am cheering and praying for you. I appreciate your efforts to make people aware of Cystic Fibrosis and premature birth.